I have been turned down for Assisted living again, due to my ‘unscheduled care needs’, which means my seizures, and neurological symptoms. So what am I and hundreds of thousands of Canadians like me supposed to do?
We have no medical treatment protocols available, and most Doctors don’ even believe Myalgic Encephalomyelitis is a real illness.

I’ve had 12 or more seizures since Wednesday afternoon, and the medications aren’t working, so it’s been bloody awful and rather messy few days. Thing is, I’m not special in this – just one of the approximately 600,000 people in Canada living with Myalgic Encephalomyelitis (ME/CFS). With no education medical schools or universities about this illness and no money for research; no treatment protocols by Health Canada either, so I’m asking a serious question to Vancouver Island Health Authourity, and Vancouver Coastal Health Authourity, in fact, ALL the Health Authorities, and the Premiers of ALL the provinces, and territories across our country, as well as Health Canada, and our Prime Minister, Justin Trudeau. Asking on behalf of the 600,000 Canadians suffering – What about ME?