Goodbye my friend

At my vets behest, tomorrow first thing, my Willow is going over the rainbow bridge to that great wilderness in the sky, where she can chase balls and raccoons and wallow in mud to her hearts content. I'm sad that I couldn't do more. Goodbye Old Girl. <3

Don’t give up!

After several video posts and an open letter to Vancouver Island Health Authourity; regarding access to Assisted Living, and accessible housing, social supports, and healthcare, I finally heard that after appealing a second time with a new Assessment of my circumstances, I've been accepted for Assisted Living! Amazing news, although it may be months before I get a place. Thanks for the support - will keep advocating for #pwME around access to healthcare, housing, and social supports and asking @AdrianDix 'What about ME?'

CBC News

The CBC kindly ran a piece on my situation yesterday. It ran on CBC Radio Victoria and also online.https://www.cbc.ca/news/canada/british-columbia/severely-ill-galiano-island-woman-turned-away-from-assisted-living-due-to-unscheduled-care-needs-1.5204759 Special thanks to Adam van der Zwan for all his efforts and hard work on the story and to ME/FM Society of BC, and Dr Mohamed Gheis for their contributions.. hopefully this will help others struggling … Continue reading CBC News

Reaching out …

To my fellow Canadians with M.E./CFS: Are you also single, and/or without family or carers? Do you have difficulties being taken seriously by your doctor's or specialists? Do you have challenges accessing appropriate treatment, and healthcare? What about accessible, affordable housing? If so, and you feel able to share a little bit about who you … Continue reading Reaching out …

Did you have a Happy Canada Day – What about M.E.?

Another video from one of the 600,000 Canadians living with ME/CFS. We deserve access to the same quality of healthcare and housing as those with other illnesses, and health concerns. My question is what do you do if you have no family or partner to care for you; what do you do, if you can no longer adequately care for yourself and your local health authourity won't help? What about M.E.?

Open Letter to Vancouver Island Health Authourity: What about M.E.?

There are 600,000 people with Myagic Encephalomyelitis living in Canada. We have the highest instance per capita of any country in the world and yet most of the Doctors and Specialists I've seen don't even believe it's a real disease. I am just one of #MillionsMissing all over the world. In Canada, things are particularly bad, with regards to lack of treatment and almost $0 research investment into causes and cures. It's not OK that we are ignored and denied the same standards of healthcare, or accessible, supported accommodation available to Canadian's with other illnesses. People with ME/CFS are effectively ignored, and left to manage alone. We have no Health Canada protocols for this illness. No research into causes and cures, and many left housebound and bedbound. Vancouver Island Health Authourity has no official protocols for patients with this illness. Nor for providing the same standards of social supports or housing supports available to people with other illnesses. It's totally unacceptable.

What about ME?

just one of the approximately 600,000 people in Canada living with Myalgic Encephalomyelitis (ME/CFS). With no education medical schools or universities about this illness and no money for research; no treatment protocols by Health Canada either, so I'm asking a serious question to Vancouver Health and Vancouver Coastal and all the Health Authorities and Health Canada - What about ME?

pneumothorax

when you've just got to take that photograph before getting on the water taxi to go to the hospital, even though your chest feels like it's exploding, although you subsequently find out, it was actually doing the opposite! And I just thought it was the view! lol ... "If me doing this, taking this picture … Continue reading pneumothorax

Can you see ME now?

Raise awareness about Myalgic Encephalomyelitis

Part of the ME/CFS week of action and awareness building - will be posting more on the fact that 600,000 Canadians live with this illness and the impact it has on our lives. With no training for Doctors and Nurses, $0 research funding for causes or cures, let alone treatment protocols from Health Canada, or even at local level. I will be posting more on this issue soon.

FOR SALE – $69,500 OBO

Informed by the Japanese Wabi-Sabi aesthetic, emphasizing the beauty of nature and organic forms, including their flaws; the materials were predominantly chosen for their patinas, weathering; and their relationship to Galiano island, and it's inhabitants.

A character building, imbued with local elements, and patinas, the palette and finishing inside evoke more of the same 'island vibe’ - sun, ocean, forest; not hewn fresh but aged and with some stories to tell!