Well, it's been a long time since I've posted here. Twitter became an easier place to post for a while. Less personal more prosaic. During that time I advocated successfully for a place in Assisted Living and moved in two weeks ago to a community in Sooke: Ayre Manor. It's a little over 500 square … Continue reading Assisted Living and ME 1.
At my vets behest, tomorrow first thing, my Willow is going over the rainbow bridge to that great wilderness in the sky, where she can chase balls and raccoons and wallow in mud to her hearts content. I'm sad that I couldn't do more. Goodbye Old Girl. <3
After several video posts and an open letter to Vancouver Island Health Authourity; regarding access to Assisted Living, and accessible housing, social supports, and healthcare, I finally heard that after appealing a second time with a new Assessment of my circumstances, I've been accepted for Assisted Living! Amazing news, although it may be months before I get a place. Thanks for the support - will keep advocating for #pwME around access to healthcare, housing, and social supports and asking @AdrianDix 'What about ME?'
The CBC kindly ran a piece on my situation yesterday. It ran on CBC Radio Victoria and also online.https://www.cbc.ca/news/canada/british-columbia/severely-ill-galiano-island-woman-turned-away-from-assisted-living-due-to-unscheduled-care-needs-1.5204759 Special thanks to Adam van der Zwan for all his efforts and hard work on the story and to ME/FM Society of BC, and Dr Mohamed Gheis for their contributions.. hopefully this will help others struggling … Continue reading CBC News
To my fellow Canadians with M.E./CFS: Are you also single, and/or without family or carers? Do you have difficulties being taken seriously by your doctor's or specialists? Do you have challenges accessing appropriate treatment, and healthcare? What about accessible, affordable housing? If so, and you feel able to share a little bit about who you … Continue reading Reaching out …
Another video from one of the 600,000 Canadians living with ME/CFS. We deserve access to the same quality of healthcare and housing as those with other illnesses, and health concerns. My question is what do you do if you have no family or partner to care for you; what do you do, if you can no longer adequately care for yourself and your local health authourity won't help? What about M.E.?
There are 600,000 people with Myagic Encephalomyelitis living in Canada. We have the highest instance per capita of any country in the world and yet most of the Doctors and Specialists I've seen don't even believe it's a real disease. I am just one of #MillionsMissing all over the world. In Canada, things are particularly bad, with regards to lack of treatment and almost $0 research investment into causes and cures. It's not OK that we are ignored and denied the same standards of healthcare, or accessible, supported accommodation available to Canadian's with other illnesses. People with ME/CFS are effectively ignored, and left to manage alone. We have no Health Canada protocols for this illness. No research into causes and cures, and many left housebound and bedbound. Vancouver Island Health Authourity has no official protocols for patients with this illness. Nor for providing the same standards of social supports or housing supports available to people with other illnesses. It's totally unacceptable.
just one of the approximately 600,000 people in Canada living with Myalgic Encephalomyelitis (ME/CFS). With no education medical schools or universities about this illness and no money for research; no treatment protocols by Health Canada either, so I'm asking a serious question to Vancouver Health and Vancouver Coastal and all the Health Authorities and Health Canada - What about ME?
One of the things that has really hit home since I got so sick is the issue of accessible and affordable housing for people who have Chronic illness and disabilities. I am very lucky because I had already built the tiny house, when I got really sick, and was inhabiting it, so while it's pretty … Continue reading Housing for People with Chronic Illness