Behind Grey Curtains Behind grey curtains, Breath, damp as Fall mist, Creeps across flayed limbs. Pain pearls on parchment lips, Kissed dry by love from a once-before life. Now minutes become years, Years become moments. The immovable hands of an invisible clock.
Well, it's been a long time since I've posted here. Twitter became an easier place to post for a while. Less personal more prosaic. During that time I advocated successfully for a place in Assisted Living and moved in two weeks ago to a community in Sooke: Ayre Manor. It's a little over 500 square … Continue reading Assisted Living and ME 1
After several video posts and an open letter to Vancouver Island Health Authourity; regarding access to Assisted Living, and accessible housing, social supports, and healthcare, I finally heard that after appealing a second time with a new Assessment of my circumstances, I've been accepted for Assisted Living! Amazing news, although it may be months before I get a place. Thanks for the support - will keep advocating for #pwME around access to healthcare, housing, and social supports and asking @AdrianDix 'What about ME?'
There are 600,000 people with Myagic Encephalomyelitis living in Canada. We have the highest instance per capita of any country in the world and yet most of the Doctors and Specialists I've seen don't even believe it's a real disease. I am just one of #MillionsMissing all over the world. In Canada, things are particularly bad, with regards to lack of treatment and almost $0 research investment into causes and cures. It's not OK that we are ignored and denied the same standards of healthcare, or accessible, supported accommodation available to Canadian's with other illnesses. People with ME/CFS are effectively ignored, and left to manage alone. We have no Health Canada protocols for this illness. No research into causes and cures, and many left housebound and bedbound. Vancouver Island Health Authourity has no official protocols for patients with this illness. Nor for providing the same standards of social supports or housing supports available to people with other illnesses. It's totally unacceptable.
just one of the approximately 600,000 people in Canada living with Myalgic Encephalomyelitis (ME/CFS). With no education medical schools or universities about this illness and no money for research; no treatment protocols by Health Canada either, so I'm asking a serious question to Vancouver Health and Vancouver Coastal and all the Health Authorities and Health Canada - What about ME?
Glorious day at one of the most beautiful places in the world.
The Supreme Collective website carries the cleanest, purest, medicinal cannabis products I have found, online, anywhere! They work with cannabis 'artists'. People at the very top of their game, producing exquisite cannabis and CBD oils, edibles, concentrates, tinctures, and topicals; as well as premium grade flowers and hash. But it's not just the quality of the products that sets this company apart; it's their ethos, and a true passion for compassion, and their dedication to providing the highest quality products, with the best possible support and customer service that sets them apart.
There are few things that bring me more joy than being able to spend some time (or even eat!) 'al fresco'. Today, I'm dog-sitting too, so that's an added treat, and although exhausted after a couple of hours, my canine companion is continuing to enjoy the ambience on my behalf!
Tough decisions today. The Community Nurse and I submitted my application for off-island Assisted-Living Accommodation; something I once believed wouldn't be a consideration until much later in life....