After several video posts and an open letter to Vancouver Island Health Authourity; regarding access to Assisted Living, and accessible housing, social supports, and healthcare, I finally heard that after appealing a second time with a new Assessment of my circumstances, I've been accepted for Assisted Living! Amazing news, although it may be months before I get a place. Thanks for the support - will keep advocating for #pwME around access to healthcare, housing, and social supports and asking @AdrianDix 'What about ME?'
There are 600,000 people with Myagic Encephalomyelitis living in Canada. We have the highest instance per capita of any country in the world and yet most of the Doctors and Specialists I've seen don't even believe it's a real disease. I am just one of #MillionsMissing all over the world. In Canada, things are particularly bad, with regards to lack of treatment and almost $0 research investment into causes and cures. It's not OK that we are ignored and denied the same standards of healthcare, or accessible, supported accommodation available to Canadian's with other illnesses. People with ME/CFS are effectively ignored, and left to manage alone. We have no Health Canada protocols for this illness. No research into causes and cures, and many left housebound and bedbound. Vancouver Island Health Authourity has no official protocols for patients with this illness. Nor for providing the same standards of social supports or housing supports available to people with other illnesses. It's totally unacceptable.
when you've just got to take that photograph before getting on the water taxi to go to the hospital, even though your chest feels like it's exploding, although you subsequently find out, it was actually doing the opposite! And I just thought it was the view! lol ... "If me doing this, taking this picture … Continue reading pneumothorax
Informed by the Japanese Wabi-Sabi aesthetic, emphasizing the beauty of nature and organic forms, including their flaws; the materials were predominantly chosen for their patinas, weathering; and their relationship to Galiano island, and it's inhabitants.
A character building, imbued with local elements, and patinas, the palette and finishing inside evoke more of the same 'island vibe’ - sun, ocean, forest; not hewn fresh but aged and with some stories to tell!
Glorious day at one of the most beautiful places in the world.
Here's one of my favourite pics of my little home, taken just a few days ago after the second big snow storm of three we had in a week.
It makes it look so cosy and I love the contrast with the white of the snow against the rusted patina and teal roof.
Not in the seven years I’ve lived on Galiano, have we had this much snow in one go! Certainly not where I am, which is virtually sea level right in Sturdies Bay. But last night there was 6-8 inches by 7:30pm, so I dug my snow shoes out of storage, and went out.
And this is why I live here, although it was actually the first beach trip this year
There are few things that bring me more joy than being able to spend some time (or even eat!) 'al fresco'. Today, I'm dog-sitting too, so that's an added treat, and although exhausted after a couple of hours, my canine companion is continuing to enjoy the ambience on my behalf!