Well I tried. That's all any of us can do. really hoped it would work out but being in assisted living made the seizures much worse. It culminated in trying new medications which caused a reaction and a bad fall which set off a series of seizures. And then more seizures a few days later. … Continue reading Moving home
Behind Grey Curtains Behind grey curtains, Breath, damp as Fall mist, Creeps across flayed limbs. Pain pearls on parchment lips, Kissed dry by love from a once-before life. Now minutes become years, Years become moments. The immoveable hands of an invisible clock.
I just had to make a big decision as to wether to stay in Assisted Living or move back to Galiano, and my tiny house. It's been really hard to know what to do. On the one hand, Ayre Manor in Sooke is a great property with beautiful trees and lovely grounds and nice bright, … Continue reading Assisted Living and ME 2
Well, it's been a long time since I've posted here. Twitter became an easier place to post for a while. Less personal more prosaic. During that time I advocated successfully for a place in Assisted Living and moved in two weeks ago to a community in Sooke: Ayre Manor. It's a little over 500 square … Continue reading Assisted Living and ME 1
After several video posts and an open letter to Vancouver Island Health Authourity; regarding access to Assisted Living, and accessible housing, social supports, and healthcare, I finally heard that after appealing a second time with a new Assessment of my circumstances, I've been accepted for Assisted Living! Amazing news, although it may be months before I get a place. Thanks for the support - will keep advocating for #pwME around access to healthcare, housing, and social supports and asking @AdrianDix 'What about ME?'
There are 600,000 people with Myagic Encephalomyelitis living in Canada. We have the highest instance per capita of any country in the world and yet most of the Doctors and Specialists I've seen don't even believe it's a real disease. I am just one of #MillionsMissing all over the world. In Canada, things are particularly bad, with regards to lack of treatment and almost $0 research investment into causes and cures. It's not OK that we are ignored and denied the same standards of healthcare, or accessible, supported accommodation available to Canadian's with other illnesses. People with ME/CFS are effectively ignored, and left to manage alone. We have no Health Canada protocols for this illness. No research into causes and cures, and many left housebound and bedbound. Vancouver Island Health Authourity has no official protocols for patients with this illness. Nor for providing the same standards of social supports or housing supports available to people with other illnesses. It's totally unacceptable.
when you've just got to take that photograph before getting on the water taxi to go to the hospital, even though your chest feels like it's exploding, although you subsequently find out, it was actually doing the opposite! And I just thought it was the view! lol ... "If me doing this, taking this picture … Continue reading pneumothorax
Informed by the Japanese Wabi-Sabi aesthetic, emphasizing the beauty of nature and organic forms, including their flaws; the materials were predominantly chosen for their patinas, weathering; and their relationship to Galiano island, and it's inhabitants.
A character building, imbued with local elements, and patinas, the palette and finishing inside evoke more of the same 'island vibe’ - sun, ocean, forest; not hewn fresh but aged and with some stories to tell!
Glorious day at one of the most beautiful places in the world.