Assisted Living and ME 1

Well, it's been a long time since I've posted here. Twitter became an easier place to post for a while. Less personal more prosaic. During that time I advocated successfully for a place in Assisted Living and moved in two weeks ago to a community in Sooke: Ayre Manor. It's a little over 500 square … Continue reading Assisted Living and ME 1

Don’t give up!

After several video posts and an open letter to Vancouver Island Health Authourity; regarding access to Assisted Living, and accessible housing, social supports, and healthcare, I finally heard that after appealing a second time with a new Assessment of my circumstances, I've been accepted for Assisted Living! Amazing news, although it may be months before I get a place. Thanks for the support - will keep advocating for #pwME around access to healthcare, housing, and social supports and asking @AdrianDix 'What about ME?'

Did you have a Happy Canada Day – What about M.E.?

Another video from one of the 600,000 Canadians living with ME/CFS. We deserve access to the same quality of healthcare and housing as those with other illnesses, and health concerns. My question is what do you do if you have no family or partner to care for you; what do you do, if you can no longer adequately care for yourself and your local health authourity won't help? What about M.E.?