Well, it's been a long time since I've posted here. Twitter became an easier place to post for a while. Less personal more prosaic. During that time I advocated successfully for a place in Assisted Living and moved in two weeks ago to a community in Sooke: Ayre Manor. It's a little over 500 square … Continue reading Assisted Living and ME 1
After several video posts and an open letter to Vancouver Island Health Authourity; regarding access to Assisted Living, and accessible housing, social supports, and healthcare, I finally heard that after appealing a second time with a new Assessment of my circumstances, I've been accepted for Assisted Living! Amazing news, although it may be months before I get a place. Thanks for the support - will keep advocating for #pwME around access to healthcare, housing, and social supports and asking @AdrianDix 'What about ME?'
just one of the approximately 600,000 people in Canada living with Myalgic Encephalomyelitis (ME/CFS). With no education medical schools or universities about this illness and no money for research; no treatment protocols by Health Canada either, so I'm asking a serious question to Vancouver Health and Vancouver Coastal and all the Health Authorities and Health Canada - What about ME?
Part of the ME/CFS week of action and awareness building - will be posting more on the fact that 600,000 Canadians live with this illness and the impact it has on our lives. With no training for Doctors and Nurses, $0 research funding for causes or cures, let alone treatment protocols from Health Canada, or even at local level. I will be posting more on this issue soon.
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Here's one of my favourite pics of my little home, taken just a few days ago after the second big snow storm of three we had in a week. It makes it look so cosy and I love the contrast with the white of the snow against the rusted patina and teal roof.
I got a dog. Her name is Willow. I got her for companionship and maybe if amenable, train her to fetch things I've dropped, or my phone if needed when I'm having an episode; having been told she was a great retriever and very smart and easy the train. Willow is an older Cocker Spaniel, … Continue reading Second Chances
And this is why I live here, although it was actually the first beach trip this year
There are few things that bring me more joy than being able to spend some time (or even eat!) 'al fresco'. Today, I'm dog-sitting too, so that's an added treat, and although exhausted after a couple of hours, my canine companion is continuing to enjoy the ambience on my behalf!