After several video posts and an open letter to Vancouver Island Health Authourity; regarding access to Assisted Living, and accessible housing, social supports, and healthcare, I finally heard that after appealing a second time with a new Assessment of my circumstances, I've been accepted for Assisted Living! Amazing news, although it may be months before I get a place. Thanks for the support - will keep advocating for #pwME around access to healthcare, housing, and social supports and asking @AdrianDix 'What about ME?'
The CBC kindly ran a piece on my situation yesterday. It ran on CBC Radio Victoria and also online.https://www.cbc.ca/news/canada/british-columbia/severely-ill-galiano-island-woman-turned-away-from-assisted-living-due-to-unscheduled-care-needs-1.5204759 Special thanks to Adam van der Zwan for all his efforts and hard work on the story and to ME/FM Society of BC, and Dr Mohamed Gheis for their contributions.. hopefully this will help others struggling … Continue reading CBC News
There are 600,000 people with Myagic Encephalomyelitis living in Canada. We have the highest instance per capita of any country in the world and yet most of the Doctors and Specialists I've seen don't even believe it's a real disease. I am just one of #MillionsMissing all over the world. In Canada, things are particularly bad, with regards to lack of treatment and almost $0 research investment into causes and cures. It's not OK that we are ignored and denied the same standards of healthcare, or accessible, supported accommodation available to Canadian's with other illnesses. People with ME/CFS are effectively ignored, and left to manage alone. We have no Health Canada protocols for this illness. No research into causes and cures, and many left housebound and bedbound. Vancouver Island Health Authourity has no official protocols for patients with this illness. Nor for providing the same standards of social supports or housing supports available to people with other illnesses. It's totally unacceptable.
just one of the approximately 600,000 people in Canada living with Myalgic Encephalomyelitis (ME/CFS). With no education medical schools or universities about this illness and no money for research; no treatment protocols by Health Canada either, so I'm asking a serious question to Vancouver Health and Vancouver Coastal and all the Health Authorities and Health Canada - What about ME?
Part of the ME/CFS week of action and awareness building - will be posting more on the fact that 600,000 Canadians live with this illness and the impact it has on our lives. With no training for Doctors and Nurses, $0 research funding for causes or cures, let alone treatment protocols from Health Canada, or even at local level. I will be posting more on this issue soon.
Glorious day at one of the most beautiful places in the world.
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Today was gorgeous! Willow and I took a slow afternoon stroll to the beach at Studies Bay, went for a paddle, and got our toes wet. It was too irresistible not to!
Here's one of my favourite pics of my little home, taken just a few days ago after the second big snow storm of three we had in a week.
It makes it look so cosy and I love the contrast with the white of the snow against the rusted patina and teal roof.