Well I tried. That’s all any of us can do. really hoped it would work out but being in assisted living made the seizures much worse. It culminated in trying new medications which caused a reaction and a bad fall which set off a series of seizures. And then more seizures a few days later. In fact, over 33 since I left my cabin on Galiano, and that’s 3-4 times as many as before.
Just got the X-rays back. Turns out I’ve got a compression fracture from the fall. Yay!
Anyways, I’m grateful for the opportunity to try assisted living. If I were able to be more social and manage more stimulation, it would be perfect. It’s a great facility on beautiful grounds, and the staff are lovely. It’s just not ideal for someone with severe M.E. or a seizure disorder.
I’m glad I tried because otherwise I’d never know but sure am glad to be home.
Happy Holidays One and All! ❤️
I have been turned down for Assisted living again, due to my ‘unscheduled care needs’, which means my seizures, and neurological symptoms. So what am I and hundreds of thousands of Canadians like me supposed to do?
We have no medical treatment protocols available, and most Doctors don’ even believe Myalgic Encephalomyelitis is a real illness.
I’ve had 12 or more seizures since Wednesday afternoon, and the medications aren’t working, so it’s been bloody awful and rather messy few days. Thing is, I’m not special in this – just one of the approximately 600,000 people in Canada living with Myalgic Encephalomyelitis (ME/CFS). With no education medical schools or universities about this illness and no money for research; no treatment protocols by Health Canada either, so I’m asking a serious question to Vancouver Island Health Authourity, and Vancouver Coastal Health Authourity, in fact, ALL the Health Authorities, and the Premiers of ALL the provinces, and territories across our country, as well as Health Canada, and our Prime Minister, Justin Trudeau. Asking on behalf of the 600,000 Canadians suffering – What about ME?
Here’s one of my favourite pics of my little home, taken just a few days ago after the second big snow storm, of three, in a week.
It makes it look so cosy and I love the contrast with the white of the snow against the rusted patina and teal roof.
Thankfully, it’s easy to keep a home this size warm with my Cubic mini stove, plus the southerly exposure means even 20 minutes of winter sun warms the place nicely.
Propane tanks and regulators keep freezing so the hot water has been very sparse, but otherwise it’s been rather lovely
There are few things that bring me more joy than being able to spend some time (or even eat!) ‘al fresco’.
Today, I’m dog-sitting too, so that’s an added treat, and although exhausted after a couple of hours, my canine companion is continuing to enjoy the ambience on my behalf!
Revamped things a little bit lately and changed the tagline to what in essence, I’m really doing:
In a Tiny House, on a Tiny Island, living a lfestyle with an intentionally small footprint, and hoping to enourage others who are differently abled or otherwise marginalized, not to allow those disabilities, to get in the way of pursuing your dreams, and following an intentional lifestyle.
In fact by living small, I found that life grows in so many ways, and by incorporating the principals of Permaculuture, one is able to achieve much more, in less time, with less resources, even with quite severe disabilities.
It’s really quite surprising what one can accomplish even while housebound for weeks at a time. That’s not to say it’s not bloody hard work, or play down the adjustments, nor am I trying to make myself out to be any kind of expert. I’m learning as I go and making lots of mistakes, which is great because it means I’m learning lots!
Anyways, I’m going to try to post more regularly and hopefully, there’s something useful in it.